From dysphagia to food restriction
effects of parental adaptation to the daughter with congenital blindness
DOI:
https://doi.org/10.23925/2176-2724.2021v33i4p686-694Keywords:
Prematurity, Dysphagia, Blindness, Psychological Adaptation, Interdisciplinary Health TeamAbstract
Introduction: The birth of a child with a disability can change routines and influence the parents’ adaptation process, as it is characterized as an unexpected event. It can still produce similar feelings in parents as those experienced in a grieving process. Objective: To analyze the relationship between parental adaptation to the daughter with congenital blindness and dysphagia, related to extreme prematurity, and its possible impact on the process of adherence to therapeutic guidelines on child nutrition. Method: This is a qualitative case study. An analysis of parental adaptation to disability as well as language therapy assessments of language and dysphagia were performed. Results: The speech therapy evaluation showed dysphagia for fine liquids and absence of language disorders. Dietary restriction became evident from the parental difficulty in accepting and following the guidelines regarding food consistency. The analysis of the parental adaptation data to the daughter’s disability suggests that this difficulty was related to the acceptance of blindness and dysphagia. The emergence of food restriction was related to the difficulties in parents’ acceptance of speech therapy guidelines, considering dysphagia for thin liquids. These difficulties find a correlate in the analysis of the father and mother’s parental adaptation. Conclusion: The importance of monitoring by an interdisciplinary team is evident.
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Copyright (c) 2021 Renata Souto Bolzan, Diogo Ribas dos Santos, Angélica Dotto Londero, Ana Paula Ramos de Souza
This work is licensed under a Creative Commons Attribution 4.0 International License.
