Parents’ perception about epilepsy

Authors

  • Maria Silian Mandu Fonseca Pontifícia Universidade Católica de São Paulo (PUC-SP), Faculdade de Ciências Médicas e da Saúde (FCMS) – Sorocaba (SP), Brasil.
  • Sandro Blasi Esposito Pontifícia Universidade Católica de São Paulo (PUC-SP), Faculdade de Ciências Médicas e da Saúde (FCMS) – Sorocaba (SP), Brasil.
  • Bryan Grignoli Silva Pontifícia Universidade Católica de São Paulo (PUC-SP), Faculdade de Ciências Médicas e da Saúde (FCMS) – Sorocaba (SP), Brasil.

DOI:

https://doi.org/10.23925/1984-4840.2018v20i1a8

Keywords:

epilepsy, child, quality of life, health knowledge, attitudes, practice

Abstract

Objective: To compare the knowledge the responsible ones for and/or relatives of children diagnosed with epilepsy and those children with other diagnosis have got about this disturb. Method: It was a cross-sectional clinical study that occurred through the application of the second part of Simplified Inventory of Life Quality on Children’s Epilepsy. Results: Eighty-three people have participated of the study, being 36 from the group of relatives of children with epilepsy and 47 from the group of children with other diagnosis. The fear of the tongue be swallowed during an epileptic seizure is present in 55.5% of relatives of children with epilepsy and in 61.7% of relatives of children from the other group. Conclusion: Then, health politics and education that evolve capacity and awareness concerning epilepsy are fundamental.

Downloads

Download data is not yet available.

Author Biographies

Maria Silian Mandu Fonseca, Pontifícia Universidade Católica de São Paulo (PUC-SP), Faculdade de Ciências Médicas e da Saúde (FCMS) – Sorocaba (SP), Brasil.

Acadêmica do Curso de Medicina da Faculdade de Ciências Médicas de Sorocaba. Área: Medicina

Sandro Blasi Esposito, Pontifícia Universidade Católica de São Paulo (PUC-SP), Faculdade de Ciências Médicas e da Saúde (FCMS) – Sorocaba (SP), Brasil.

Professor Doutor do Departamento de Neurologia da Faculdade de Ciências Médicas de Sorocaba. .rea: Medicina,

Bryan Grignoli Silva, Pontifícia Universidade Católica de São Paulo (PUC-SP), Faculdade de Ciências Médicas e da Saúde (FCMS) – Sorocaba (SP), Brasil.

Acadêmico do Curso de Medicina da Faculdade de Ciências Médicas de Sorocaba. Área: Medicina

References

Fisher RS, Van Emde Boas W, Blume W, Elger C, Genton P, Lee P, et al. Epileptic seizures and epilepsy: definitions proposed by the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE). Epilepsia. 2005;46(4):470-2. DOI: 10.1111/j.0013-9580.2005.66104.x

Berg AT, Berkovic SF, Brodie MJ, Buchhalter J, Cross JH, van Emde Boas W, et al. Revised terminology and concepts for organization of seizures and epilepsies: report of the ILAE Commission on Classification and Terminology, 2005-2009. Epilepsia. 2010;51(4):676-85. DOI: 10.1111/j.1528-1167.2010.02522.x.

Scorza FA, Cavalheiro EA. Epilepsias: aspectos sociais e psicológicos. R Cult R IMAE. 2004;5(11):48–53.

World Health Organization. WHO epilepsy [Internet]. World Health Organization: 2017 [acesso em 01 fev. 2016]. Disponível em: http://www.who.int/mediacentre/factsheets/fs999/en/#.U8LG20HIf2k.mendeley

Fisher RS, Acevedo C, Arzimanoglou A, Bogacz A, Cross JH, Elger CE, et al. ILAE official report: a practical clinical definition of epilepsy. Epilepsia. 2014;55(4):475-82. DOI: 10.1111/epi.12550

American Epilepsy Society. FAQS [Internet]. 2014 [acesso em 13 fev. 2016]. Disponível em: https://www.aesnet.org/clinical_resources/faqs

Noronha ALA, Borges MA, Marques LHN, Zanetta DMT, Fernandes PT, de Boer H, et al. Prevalence and pattern of epilepsy treatment in different socioeconomic classes in Brazil. Epilepsia. 2007;48(5):880–5. DOI: 10.1111/j.1528-1167.2006.00974.x

Fernandes PT, Li LM. Percepção de estigma na epilepsia. J Epilepsy Clin Neurophysiol. 2006;12(4):207-18. DOI: 10.1590/S1676-26492006000700005.

Glauser TA, Morita DA, Stannard KM, Benbadis SR, Kao A, Baumann RJ, et al. Infantile Spasm (West Syndrome). Medscape [Internet]. 2012 [acesso em 16 fev. 2016]. Disponível em: http://emedicine.medscape.com/article/1176431-overview

Osborne JP, Lux AL, Edwards SW, Hancock E, Johnson AL, Kennedy CR, et al. The underlying etiology of infantile spasms (West syndrome): information from the United Kingdom Infantile Spasms Study (UKISS) on contemporary causes and their classification. Epilepsia. 2010;51(10):2168-74. DOI: 10.1111/j.1528-1167.2010.02695.x

Ablon J. The nature of stigma and medical conditions. Epilepsy Behav. 2002;3(6S2):2-9. DOI: 10.1016/S1525-5050(02)00543-7

Baker GA. People with epilepsy: what do they know and understand, and how does this contribute to their perceived level of stigma? Epilepsy Behav. 2002;3(6S2):26–32. DOI: 10.1016/S1525-5050(02)00544-9

Baker GA, Brooks J, Buck D, Jacoby A. The stigma of epilepsy: a European perspective. Epilepsia. 2000;41(1):98-104. DOI: 10.1111/j.1528-1157.2000.tb01512.x

Gomes MM. História da epilepsia: um ponto de vista epistemológico. J Epilepsy Clin Neurophysiol. 2006;12(3):161-7. DOI: 10.1590/S1676-26492006000500009

Lewis MA, Hatton CL, Salas I, Leake B, Chiofalo N. Impact of the Children’s Epilepsy Program on parents. Epilepsia. 1991;32(3):365-74.

Thompson P, Upton D. Epilepsy and quality of life: quality of life in family members of persons with epilepsy. 2nd ed. New York: Raven Press; 1994. p. 19-31.

Fernandes PT, Souza EA. Identification of family variables in parents’ groups of children with epilepsy. Arq Neuropsiquiatr. 2001;59(4):854-8. DOI: http://dx.doi.org/10.1590/S0004-282X2001000600004

Fernandes PT, Souza EAP. Inventário simplificado de qualidade de vida na epilepsia infantil: primeiros resultados. Arq Neuropsiquiatr. 1999;57(1):40-3. DOI: http://dx.doi.org/10.1590/S0004-282X1999000100008

MacLeod JS, Austin JK. Stigma in the lives of adolescents with epilepsy: a review of the literature. Epilepsy Behav. 2003;4(2):112-7. DOI: 10.1016/S1525-5050(03)00007-6

Guerreiro MM, Silva EA, Scotoni AE, Souza EAP. Qualidade de vida em epilepsia na infância. J Liga Bras Epilepsia. 1994;7(1):21–6.

Siegel S, Castellan Jr. NJ. Estatística não-paramétrica para as ciências do comportamento. 2ª ed. São Paulo: Penso; 2006.

Downloads

Published

2018-04-27

How to Cite

1.
Fonseca MSM, Esposito SB, Silva BG. Parents’ perception about epilepsy. Rev. Fac. Ciênc. Méd. Sorocaba [Internet]. 2018Apr.27 [cited 2024Dec.19];20(1):33-7. Available from: https://revistas.pucsp.br/index.php/RFCMS/article/view/27229

Issue

Vol. 20 No. 1 (2018)

Section

Original Article

License

Os autores no momento da submissão transferem os direitos autorais, assim, os manuscritos publicados passam a ser propriedade da revista.

O conteúdo do periódico está licenciado sob uma Licença Creative Commons 4.0, esta licença permite o livre acesso imediato ao trabalho e que qualquer usuário leia, baixe, copie, distribua, imprima, pesquise ou vincule aos textos completos dos artigos, rastreando-os para indexação, passá-los como dados para o software, ou usá-los para qualquer outra finalidade legal.

Crossref
Scopus
Google Scholar
Europe PMC